Week 20 - Parkinson's UK

I'm sure it won't have escaped your attention that this week that it was Back To The Future day - the day that Marty McFly in the second film travels to from 1985 - on Wednesday.  To celebrate Nike produced a pair of self-lacing trainers, one of the predictions of the future in the movie.  They sent them to Michael J Fox with a note detailing that they are going to produce a line of them to raise money for research into Parkinson's disease.

Watching the video of Michael J Fox trying on the shoes, along with the skit he appeared in on the Jimmy Kimmel Show reminded me of how much Fox has been affected by Parkinson's.  So this has inspired this week's donation.

Parkinson's is a progressive neurological disease where the nerve cells in the brain are damaged, reducing the production of the hormone dopamine.  The most usual symptoms are tremors, stiffness and the slowing of movement but it can cause many other symptoms around the body including speech problems, fatigue and pain.  One in 500 people in the UK has Parkinson's.

Parkinson's UK provide support and information to sufferers of the disease.  They fund research on treatments, discovering the causes and working towards finding a cure for Parkinson's and have invested over £70 million on this research.  Finally, they also campaign to raise awareness of Parkinson's, changing attitudes and combating the myths surrounding it as well as working to ensure those with the disease are treated fairly and have access to the care they need.

Links

Parkinson's UK
Michael J Fox Foundation
Michael J Fox tries on the first self-lacing Nikes

Week 19 - Juvenile Diabetes Research Foundation

This is brilliant.  Despite suffering from anxiety, OCD and claustrophobia Jack White set himself a task this weekend imprisoning himself in a hotel room and remaining silent for 75 hours to raise money for the Juvenile Diabetes Research Foundation (JDRF).  Doesn't sound too difficult right?  How about removing all luxury items - no TV, no iPhone, no books, no luxury food?  How about then asking people to nominate a song to be played on repeat for the full 75 hours?  Jack got himself well and truly Rick-rolled as the nominated song was Never Gonna Give You Up by Rick Astley.  Sounding pretty horrendous now!

The hotel room has been set up with video cameras live-streaming the event on YouTube.  Sadly in the first few hours internet trolls posted so many nasty comments rotates his family, particularly his young nieces and nephews.  This provoked an anxiety attack and on medical advice he decided not to continue.  However his brother James has stepped into the room and is continuing the challenge.  I think this deserves a donation!

The JDRF raises money to fund research into type 1 diabetes. Over the last four decades they have invested £1 billion into scientific efforts to improve treatments and ultimately find a cure for the condition.  They also provide support to sufferers and their families.  Type 1 diabetes is an auto-immune disease which attacks and kills the insulin producing cells in the pancreas.  Insulin allows glucose in the blood to be moved into the cells and converted into energy so a lack of glucose leads to an imbalance - not enough energy and excessive glucose in the blood.  Those with the condition have to closely monitor their blood glucose levels and control it using both diet and insulin injections.

Links:

Jack White's JustGiving Page
James In A Box Live Stream
Jack In A Box Facebook Page
Juvenile Diabetes Research Foundation

Week 18 - Reuben Bear Campaign

A late one as I've been on holiday and this is slightly outside of my rules as it isn't a registered charity.  It was referred to me by my sister who is an occupational therapist specialising in burns.  I wasn't sure about including it but following my donation to Aspire last week it made sense.  After all, so many of these successful charities begin from small, personal stories.

In July of this year, young Reuben Harvey-Smith suffered a minor burn.  Three days later he was in intensive care, fighting for his life with Toxic Shock Syndrome (TSS).  He lost parts of his fingers and had to have both legs amputated below the knee.  The campaign was started by his mother Lou to help raise money for the prosthetics Reuben will need as he grows up as well as other adaptable equipment.

Lou Harvey-Smith is also spearheading a campaign to raise awareness of the link between a simple sure and TSS and sepsis.  As well as Reuben's teddy bear stumps, this is where the BEAR comes into the campaign:

B - Burn.  Has the person recently suffered a burn?
E - Examine.  Are there signs of sepsis?  These can include a fever, flu-like symptoms and nausea.
A - Advice.  Attend A&E immediately as Toxic Shock Syndrome can be fatal.
R - Referrel.  If you are concerned about a burn that may be infected ask for a referral to a specialist burns unit immediately.

The fundraising link the the Reuben Bear Campaign is here.

Week 17 - Aspire

This week I'm sponsoring a friend who is raising money for Aspire.  Beverley is swimming a total of 22 miles - the distance of the English Channel - over 12 weeks.

Aspire provide practical help to those who have been paralysed by spinal cord injuries.  Around 40,000 people in the UK live with a spinal cord injury and another person is paralysed by injury every eight hours.  There is no cure or repair to such injuries so Aspire helps to rehabilitate and support those who are living with spinal disabilities.

The charity was originally founded in 1982 to provide improved equipment to the Royal National Orthopaedic Hospital in Stanmore but the vision grew to providing a whole new facility; a fully accessible training and leisure centre for both disabled and able-bodied people to use and promote integration.  The original building was opened in 1991 by HRH the Princess of Wales who was a patron of the charity.  An extension, double in size and designed by Sir Norman Foster, was opened in 1998.

As well as the leisure centre, Aspire now also provide support to disabled people, whether they have a new injury or have lived with an injury for years.  They help fund specialist equipment, advise on matters such as living independently and access to welfare and can provide short-term housing in accessible accommodation while someone is adapting their own home or searching for a new one.  They ensure people with spinal cord injuries have independent access to a computer and also campaign on issues surrounding accessibility in public places.

Good luck Bev!